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Creating a Palliative Educational Session for Hematopoietic Stem Cell Transplantation Recipients at Relapse

Liz Diana Cooke
Robin Gemmill
Marcia Lee Grant
CJON 2011, 15(4), 411-417 DOI: 10.1188/11.CJON.411-417

Relapse after hematopoietic stem cell transplantation (HSCT) is a stressful event for patients and families, but provides an opportunity for education and psychosocial support. Little available research satisfies the needs of transplantation recipients at this critical time in the cancer trajectory. This article will apply the End-of-Life Nursing Education Consortium content principles to tailor an education session in an advanced practice nursing research intervention after a relapse from HSCT. The components were a specific session devoted to relapse, family-focused education and assessment, and bereavement follow-up. The details of the three steps are discussed with application to four case studies, which describe the variety of scenarios that can occur and illustrate how a standard approach should be tailored for each situation. In addition, the actual teaching tools and forms used for the intervention are included.


American Association of Colleges of Nursing. (2010). AACN end-of-life care. Retrieved from <a target="_blank" href='http://www.aacn.nche.edu/elnec'>http://www.aacn.nche.edu/elnec</a>

American Association of Colleges of Nursing. (2011). End-of-Life Nursing Education Consortium fact sheet. Retrieved from <a target="_blank" href='http://www.aacn.nche.edu/elnec/factsheet.htm'>http://www.aacn.nche.edu/e...

American Cancer Society. (2011a). Nearing the end of life. Retrieved from <a target="_blank" href='http://www.cancer.org/Treatment/NearingtheEndofLife/NearingtheEndofLife/...

American Cancer Society. (2011b). Sex and men with cancer. Retrieved from <a target="_blank" href='http://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEff...

American Cancer Society. (2011c). Sexuality for the woman with cancer. Retrieved from <a target="_blank" href='http://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEff...

Bowman, K.F., Rose, J.H., Radziewicz, R.M., O'Toole, E., & Berila, R.A. (2009). Family caregiver engagement in a coping and communication support intervention tailored to advanced cancer patients and families. <i>Cancer Nursing, 32</i>, 73-81.

Brown-Salzman, K. (2006). Transforming the grief experience. In R.M. Carroll-Johnson, L.M. Gorman, & N.J. Bush (Eds.), <i>Psychosocial nursing care along the cancer continuum</i> (2nd ed., pp. 293-314). Pittsburgh, PA: Oncology Nursing Society.

California State Cemetery and Funeral Bureau. (2005). Consumer guide to funeral and cemetery purchases. Retrieved from <a target="_blank" href='http://www.cfb.ca.gov/consumer/funeral.shtml'>http://www.cfb.ca.gov/cons...

Center on Aging. (2002). <i>Preparing to say good-bye: Care for the dying.</i> Manoa, HI: John A. Burns School of Medicine. Retrieved from <a target="_blank" href='http://www.areaofficeonaging.com/ECHO3.pdf'>http://www.areaofficeonaging...

City of Hope National Medical Center. (n.d.). <i>Low bacteria diet.</i> Duarte, CA: Author.

City of Hope National Medical Center. (2002). <i>A patient's guide to blood and marrow stem cell transplantation</i> (3rd ed.). Duarte, CA: Author.

City of Hope National Medical Center. (2004). <i>Patient guide: How to take care of your external center vascular access device.</i> Duarte, CA: Author.

Corless, I.B. (2010). Bereavement. In B.R. Ferrell & N. Coyle (Eds.), <i>Oxford textbook of palliative nursing</i> (3rd ed., pp. 597-610). New York, NY: Oxford University Press.

Davies, B., & Steele, R. (2010). Supporting families in palliative care. In B.R. Ferrell & N. Coyle (Eds.), <i>Oxford textbook of palliative nursing</i> (3rd ed., 613-627). New York, NY: Oxford University Press.

Ellifritt, J., Nelson, K.A., & Walsh, D. (2003). Complicated bereavement: A national survey of potential risk factors. <i>American Journal of Hospice and Palliative Care, 20</i>, 114-120. doi:10.1177/104990910302000209

Ersek, M., & Cotter, V.T. (2010). The meaning of hope in the dying. In B.R. Ferrell & N. Coyle (Eds.), <i>Oxford textbook of palliative nursing</i> (3rd ed., pp. 579-595). New York, NY: Oxford University Press.

Horowitz, M. (2009). Uses and growth of hematopoietic cell transplantation. In F.R. Appelbaum, S.J. Forman, R.S. Negrin, & K.G. Blume (Eds.), Thomas' hematopoietic cell transplantation (4th ed., pp. 15-26). Hoboken, NJ: Wiley-Blackwell.

Hospice and Palliative Nurses Association. (2010). <i>Patient/family teaching sheet: Final days.</i> Retrieved from <a target="_blank" href='http://www.hpna.org/pdf/teachingsheet_finaldays.pdf'>http://www.hpna.org...

Institute of Medicine. (1998). Approaching death: Improving care at the end of life. <i>Health Services Research, 33</i>, 1-3.

Lautrette, A., Darmon, M., Megarbane, B., Joly, L.M., Chevret, S., Adrie, C., … Azoulay, E. (2007). A communication strategy and brochure for relatives of patients dying in the ICU. <i>New England Journal of Medicine, 356</i>, 469-478. doi:10.1056/NEJMoa063446

Leukemia and Lymphoma Society. (2005). <i>Coping with survival: Support for people living with adult leukemia, lymphoma, and myeloma.</i> White Plains, NY: Author.

Leukemia and Lymphoma Society. (2007). <i>Touching lives: A directory of patient services programs.</i> White Plains, NY: Author.

Leukemia and Lymphoma Society. (2011). <i>Blood and marrow stem cell transplantation.</i> Retrieved from <a target="_blank" href='http://www.lls.org/content/nationalcontent/resourcecenter/freeeducationm...

Malloy, P., Ferrell, B.R., Virani, R., Uman, G., Rhome, A.M., Whitlatch, B., & Bednash, G. (2006). Evaluation of end-of-life nursing education for continuing education and clinical staff development educators. <i>Journal for Nurses in Staff Development, 22</i>, 31-36. doi:10.1097/00124645-200601000-00008

Manitta, V.J., Philip, J.A., & Cole-Sinclair, M.F. (2010). Palliative care and the hemato-oncological patient: Can we live together? A review of the literature. <i>Journal of Palliative Medicine, 13</i>, 1021-1025. doi:10.1089/jpm.2009.0267

Marwit, S.J., Chibnall, J.T., Dougherty, R., Jenkins, C., & Shawgo, J. (2008). Assessing pre-death grief in cancer caregivers using the Marwit-Meuser Caregiver Grief Inventory (MM-CGI). <i>Psycho-Oncology, 17</i>, 300-303. doi:10.1002/pon.1218

National Cancer Institute. (2008). <i>Coping with advanced cancer.</i> Retrieved from <a target="_blank" href='http://www.cancer.gov/cancertopics/coping/advancedcancer.pdf'>http://www...

National Cancer Institute. (2009). <i>Taking time: Support for people with cancer.</i> Retrieved from <a target="_blank" href='http://www.cancer.gov/cancertopics/coping/takingtime.pdf'>http://www.can...

National Cancer Institute. (2010a). <i>Facing forward: Life after cancer treatment.</i> Retrieved from <a target="_blank" href='http://www.cancer.gov/cancertopics/coping/life-after-treatment.pdf'>http...

National Cancer Institute. (2010b). <i>When cancer returns.</i> Retrieved from <a target="_blank" href='http://www.cancer.gov/cancertopics/coping/when-cancer-returns.pdf'>http:...

National Cancer Institute. (2010c). <i>When someone you love has advanced cancer.</i> Retrieved from <a target="_blank" href='http://www.cancer.gov/cancertopics/coping/When-Someone-You-Love-Has-Adva...

National Cancer Institute. (2011a). <i>Eating hints: Before, during, and after cancer treatment.</i> Retrieved from <a target="_blank" href='http://www.cancer.gov/cancertopics/coping/eatinghints.pdf'>http://www.ca...

National Cancer Institute. (2011b). Fatigue (PDQ®). Retrieved from <a target="_blank" href='http://www.cancer.gov/cancertopics/pdq/supportivecare/fatigue/HealthProf...

Negrin, R.S., & Blume, K.G. (2006). Principles of hematopoietic cell transplantation. In T.K.M. Lichtman, K. Kaushansky, E. Beutler, U. Seligson., & J. Prchal (Eds.), <i>Williams hematology</i> (7th ed., pp. 301-322). New York, NY: McGraw-Hill Medical.

Prigerson, H.G., Bierhals, A.J., Kasl, S.V., Reynolds, C.F., III, Shear, M.K., Day, N., … Jacobs, S. (1997). Traumatic grief as a risk factor for mental and physical morbidity. <i>American Journal of Psychiatry, 154</i>, 616-623.

Rolland, J.S. (2005). Cancer and the family: An integrative model. <i>Cancer, 104</i>(11, Suppl.), 2584-2595. doi:10.1002/cncr.21489

Sanders, S., Marwit, S.J., Meuser, T.M., & Harrington, P. (2007). Caregiver grief in end-stage dementia: Using the Marwit and Meuser Caregiver Grief Inventory for assessment and intervention in social work practice. <i>Social Work in Health Care, 46</i>, 47-65. doi:10.1300/J010v46n01_04

Stewart, S. (2002). <i>Bone marrow and blood stem cell transplants: A guide for patients.</i> Highland Park, IL: BMT InfoNet.

van den Brink, M.R., Porter, D.L., Giralt, S., Lu, S.X., Jenq, R.R., Hanash, A., & Bishop, M.R. (2010). Relapse after allogeneic hematopoietic cell therapy. <i>Biology of Blood Marrow Transplantation, 16</i>(1, Suppl.), S138-S145. doi:10.1016/j.bbmt.2009.10.023

Wolfelt, A. (2001). <i>Healing your grieving heart: 100 practical ideas.</i> Fort Collins, CO: Companion Press.

Yoon, S.J., Conway, J., & McMillan, M. (2006). An exploration of the concept of patient education: Implications for the development of educational programmes for relapsed post-bone marrow transplantation patients and their families in Korea. <i>International Journal of Nursing Practice, 12</i>, 129-135.