References
Ashing-Giwa, K., Ganz, P. A., & Petersen, L. (1999). Quality of life of African-American and White long term breast carcinoma survivors. Cancer, 85, 418-426.
Ashing-Giwa, K. T. (2005a). Can a culturally responsive model for research design bring us closer to addressing participation disparities? Lessons learned from cancer survivorship studies. Ethnicity and Disease, 15, 130-137.
Ashing-Giwa, K. T. (2005b). The contextual model of HRQoL: A paradigm for expanding the HRQOL framework. Quality of Life Research, 14, 297-307. doi:10.1007/s11136-004-0729-7
Ashing-Giwa, K. T. (2008). Enhancing physical well-being and overall quality of life among underserved Latina-American cervical cancer survivors: Feasibility study. Journal of Cancer Survivorship, 2, 215-223.
Ashing-Giwa, K. T., & Lim, J. (2008). Predicting health-related quality of life: Testing the Contextual Model using structural equation modeling. Applied Research in Quality of Life, 3, 215-230. doi:10.1007/s11482-009-9057-y
Ashing-Giwa, K. T., Padilla, G. V., Tejero, J. S., & Kim, J. (2004). Breast cancer survivorship in a multiethnic sample: Challenges in recruitment and measurement. Cancer, 101, 450-465. doi:10.1002/cncr.20370
Ashing-Giwa, K. T., Tejero, J. S., Kim, J., Padilla, G. V., & Hellemann, G. (2007). Examining predictive models of HRQOL in a population-based, multiethnic sample of women with breast carcinoma. Quality of Life Research, 16, 413-428. doi:10.1007/s11136-006-9138-4
Ashing-Giwa, K. T., Tejero, J. S., Kim, J., Padilla, G. V., Kagawa-Singer, M., Tucker, M. B., & Lim, J. W. (2009). Cervical cancer survivorship in a population based sample. Gynecologic Oncology, 112, 358-364. doi:10.1016/j.ygyno.2008.11.002
Baquet, C. R., Ellison, G. L., & Mishra, S. I. (2009). Analysis of Maryland cancer patient participation in National Cancer Institute-supported cancer treatment clinical trials. Journal of Health Care for the Poor and Underserved, 20, 120-134.
Brown, D. R., Fouad, M. N., Basen-Engquist, K., & Tortolero-Luna, G. (2000). Recruitment and retention of minority women in cancer screening, prevention, and treatment trials. Annals of Epidemiology, 10(8, Suppl.), S13-S21. doi:10.1016/S1047-2797(00)00197-6
Cella, D. (1997). FACIT manual: Manual of the Functional Assessment of Chronic Illness Therapy (FACIT) measurement system. Evanston, IL: Center on Outcomes, Research and Education.
Comis, R. L., Miller, J. D., Aldigé, C. R., Krebs, L., & Stoval, E. (2003). Public attitudes toward participation in cancer clinical trials. Journal of Clinical Oncology, 21, 830-835. doi:10.1200/JCO.2003.02.105
Du, H., Valenzuela, V., Diaz, P., Cella, D., & Hahn, E. A. (2008). Factors affecting enrollment in literacy studies for English- and Spanish-speaking cancer patients. Statistics in Medicine, 27, 4119-4131. doi:10.1002/sim.3259
Du, W., Mood, D., Gadgeel, S., & Simon, M. S. (2009). An educational video to increase clinical trials enrollment among breast cancer patients. Breast Cancer Research and Treatment, 117, 339-347.
Eakin, E. G., Bull, S. S., Riley, K., Reeves, M. M., Gutierrez, S., & McLaughlin, P. (2007). Recruitment and retention of Latinos in a primary care-based physical activity and diet trial: The Resources for Health study. Health Education Research, 22, 361-371. doi:10.1093/her/cyl095
Ellish, N. J., Scott, D., Royak-Schaler, R., & Higginbotham, E. J. (2009). Community-based strategies for recruiting older, African Americans into a behavioral intervention study. Journal of the National Medical Association, 101, 1104-1111.
Evelyn, B., Toigo, T., Banks, D., Pohl, D., Gray, K., Robins, B., & Ernat, J. (2001). Participation of racial/ethnic groups in clinical trials and race-related labeling: A review of new molecular entities approved 1995-1999. Journal of the National Medical Association, 93(12, Suppl.), 18S-24S.
Farmer, D. F., Jackson, S. A., Camacho, F., & Hall, M. A. (2007). Attitudes of African American and low socioeconomic status White women toward medical research. Journal of Health Care for the Poor and Underserved, 18, 85-99. doi:10.1353/hpu.2007.0008
Ford, J. G., Howerton, M. W., Bolen, S., Gray, T. L., Lai, G. Y., Tilburt, J., … Bass, E. B. (2005). Knowledge and access to information on recruitment of underrepresented populations to cancer clinical trials. Evidence Report/Technology Assessment, 122, 1-11.
Ford, J. G., Howerton, M. W., Lai, G. Y., Gary, T. L., Bolen, S., Gibbons, M. C., … Bass, E. B. (2008). Barriers to recruiting underrepresented populations to cancer clinical trials: A systematic review. Cancer, 112, 228-242. doi:10.1002/cncr.23157
Galea, S., & Tracy, M. (2007). Participation rates in epidemiologic studies. Annals of Epidemiology, 17, 643-653.
Giuliano, A. R., Mokuau, N., Hughes, C., Tortolero-Luna, G., Risendal, B., Ho, R. C. S., … McCaskill-Stevens, W. J. (2000). Participation of minorities in cancer research: The influence of structural, cultural, and linguistic factors. Annals of Epidemiology, 10(8, Suppl. 1), S22-S34. doi:10.1016/S1047-2797(00)00195-2
Hahn, E. A., & Cella, D. (2003). Health outcomes assessment in vulnerable populations: Measurement challenges and recommendations. Archives of Physical Medicine and Rehabilitation, 84(4, Suppl. 2), S35-S42. doi:10.1053/apmr.2003.50245
Hahn, E. A., Du, H., Garcia, S. F., Choi, S. W., Lai, J. S., Victorson, D., & Cella, D. (2010). Literacy-fair measurement of health-related quality of life will facilitate comparative effectiveness research in Spanish-speaking cancer outpatients. Medical Care, 48(6, Suppl.), S75-S82. doi:10.1097/MLR.0b013e3181d6f81b
Hatchett, B. F., Holmes, K., Duran, D. A., & Davis, C. (2000). African Americans and research participation: The recruitment process. Journal of Black Studies, 30, 664-675. doi:10.1177/002193470003000502
Hays, R. D., Sherbourne, C. D., & Mazel, R. M. (1993). The RAND 36-Item Health Survey 1.0. Health Economics, 2, 217-227. doi:10.1002/hec.4730020305
Hiatt, R. A., Pasick, R. J., Stewart, S., Bloom, J., Davis, P., Gardiner, P., … Stroud, F. (2001). Community-based cancer screening for underserved women: Design and baseline findings from the Breast and Cervical Cancer Intervention Study. Preventive Medicine, 33, 190-203. doi:10.1006/pmed.2001.0871
Holmbeck, G. N. (1997). Toward terminological, conceptual, and statistical clarity in the study of mediators and moderators: Examples from the child-clinical and pediatric psychology literatures. Journal of Consulting and Clinical Psychology, 65, 599-610. doi:10.1037/0022-006X.65.4.599
Institute of Medicine. (2008). Cancer care for the whole patient: Meeting psychosocial health needs. Washington, DC: National Academies Press.
Levkoff, S., & Sanchez, H. (2003). Lessons learned about minority recruitment and retention from Centers on Minority Aging and Health Promotion. Gerontologist, 43(1), 18-26. doi:10.1093/geront/43.1.18
MacKinnon, D. P., & Fairchild, A. J. (2009). Current directions in mediation analysis. Current Directions in Psychological Science, 18(1), 16.doi:10.1111/j.1467-8721.2009.01598.x
McCorkle, R., Tang, S. T., Greenwald, H., Holcombe, G., & Lavery, M. (2006). Factors related to depressive symptoms among long-term survivors of cervical cancer. Health Care for Women International, 27(1), 45-58. doi:10.1080/07399330500377507
McIlvane, J. M., Baker, T. A., Mingo, C. A., & Haley, W. E. (2008). Are behavioral interventions for arthritis effective with minorities? Addressing racial and ethnic diversity in disability and rehabilitation. Arthritis and Rheumatism, 59, 1512-1518. doi:10.1002/art.24117
Mishel, M. H., Germino, B. B., Gil, K. M., Belyea, M., Laney, I. C., Stewart, J., … Clayton, M. (2005). Benefits from an uncertainty management intervention for African-American and Caucasian older long-term breast cancer survivors. Psycho-Oncology, 14, 962-978. doi:10.1002/pon.909
Moreno-John, G., Gachie, A., Flemming, C. M., Nápoles-Springer, A., Mutran, E., Manson, S. M., & Pérez-Stable, E. J. (2004). Ethnic minority older adults participating in clinical research: Developing trust. Journal of Aging Health, 16(5, Suppl.), 93S-123S. doi:10.1177/0898264304268151
Nicholson, W. K., Brown, A. F., Gathe, J., Grumbach, K., Washington, A. E., & Pérez-Stable, E. J. (1999). Hormone replacement therapy for African American women: Missed opportunities for effective intervention. Menopause, 6(2), 147-155.
Portillo, C. J., Villarruel, A., de Leon Siantz, M. L., Peragallo, N., Calvillo, E. R., & Eribes, C. M. (2001). Research agenda for Hispanics in the United States: A nursing perspective. Nursing Outlook, 49, 263-269. doi:10.1067/mno.2001.119691
Powell, J. H., & Fleming, Y. (2000). Making medicines for America: The case for clinical trial diversity. Journal of the National Medical Association, 92, 507-514.
Sandgren, A. K., & McCaul, K. D. (2003). Short-term effects of telephone therapy for breast cancer patients. Health Psychology, 22, 310-315. doi:10.1037/0278-6133.22.3.310
Schmotzer, G. L. (2012). Barriers and facilitators to participation of minorities in clinical trials. Ethnicity and Disease, 22, 226-230.
Shavers, V. L., Lynch, C. F., & Burmeister, L. F. (2002). Racial differences in factors that influence the willingness to participate in medical research studies. Annals of Epidemiology, 12, 248-256. doi:10.1016/S1047-2797(01)00265-4.
Stark, N., Paskett, E., Bell, R., Cooper, M. R., Walker, E., Wilson, A., & Tatum, C. (2002). Increasing participation of minorities in cancer clinical trials: Summary of the "Moving Beyond the Barriers" conference in North Carolina. Journal of the National Medical Association, 94, 31-39. doi:10.1016/S1047-2797(01)00265-4
Stull, V. B., Snyder, D. C., & Demark-Wahnefried, W. (2007). Lifestyles intervention in cancer survivors: Designing programs that meet the needs of this vulnerable and growing population. Journal of Nutrition, 137(1, Suppl.), 243S-248S.
Topp, R., Newman, J. L., & Jones, V. F. (2008). Including African Americans in health care research. Western Journal of Nursing Research, 30, 197-203. doi:10.1177/0193945907303063
Wendler, D., Kington, R., Madans, J., Van Wye, G., Christ-Schmidt, H., Pratt, L. A., … Emanuel, E. (2006). Are racial and ethnic minorities less willing to participate in health research? PLoS Med, 3(2), e19. doi:10.1371/journal.pmed.0030019
Yancey, A. K., Ortega, A. N., & Kumanyika, S. K. (2006). Effective recruitment and retention of minority research participants. Annual Review of Public Health, 27, 1-28.